So, I’d like to take the time to write about my most recent doctor’s office experience; more specifically, the neuromuscular specialist. And, of course my second EMG. And after this, I hope to never have to write about another EMG experience. Lol.
Overall, my appointment went well. The neuromuscular specialist, and the neurologist who was there helping, were very thorough; which I appreciated very much. I felt heard, listened to, and respected. Already a win!
It felt like the entire hour was just a bunch of push against my arm, now pull. Raise your leg. Extend your leg. Walk on your heels. Walk on your toes. Sit back down. Lay back. Lift your head off the pillow (this is excruciating for me). Turn on your side. Raise your leg. Sit up. Push again. Pull.
After the physical exam was done, the neuromuscular specialist had me do a second EMG, which based on my last EMG experience, I was dreading. But this experience was very different. Like, VERY different.
Once I laid down, I saw that they had this beautiful decoration on the ceiling. It was lit up from the ceiling light. The images were of a blue sky with fluffy, white clouds. There was a rainbow. And cherry blossom trees. It was very calming and I felt relaxed just looking at it.
Once I was settled in, the young woman did the zappy part of the test. She put heated bags on both of my feet and my right hand (which felt great considering that I was freezing and my Raynauds was in full effect). It was also relaxing. She told me everything she was going to be doing. Her zapping compared to the first test I had, was much milder. I was surprised by this.
Then the neurologist came in. He was very nice and calming. Again, he told me everything he was going to be doing, every movement to do when we are ready to contract the muscle, etc. He even used a cold spray before putting the needle in, which I think helped. When he put the needles in, it didn’t even hurt. I could feel him moving the needle around, but it was nothing to flinch over. I contracted my muscles when he told me to. He got a read on the machine, and that was it.
I was most concerned about my back being done because of my last experience. During that appointment, the woman who did it went so fast, it was painful, and I didn’t even have a chance to catch my breath. And it was so bad I started crying half way through. I also know she didn’t take my scoliosis into account, because one of the spots she put the needle in was right over my spine. Sigh.
This appointment, however, was nothing like that. He went slow and took his time. He told me movements to do to contract my muscles. Cold spray on, needle in, boom, we’re done.
I didn’t flinch once. I didn’t grip onto anything in pain. I was in control of my breathing at all times. I didn’t clench my jaw once. I didn’t cry. I didn’t yell in pain. I was completely relaxed. I continued to have conversations with the neurologist and assistant throughout the exam. I literally could have done another 5 tests in a row based on how they did it during this appointment.
My biggest takeaway? That the first EMG experience I had…that woman BUTCHERED me!!! BUTCHERED! This second EMG experience, oh my goodness, so much better. What a difference!
When I see my rheumatologist tomorrow, I am going to insist that when he recommends anyone to have an EMG, to please please please send them to where I just went instead of the other place. It’s the very least I can do if I can help save someone from experiencing what I did the first time.
But back to my neuromuscular appointment. The doctor reviewed everything and was able to rule more things out and suggest what he thinks I have going on. Tomorrow at my rheumatologist appointment, we are going to talk more about it. So my next post will be about a finalized diagnosis. *fingers crossed.* So more to come on that.